The Long COVID Experience Study
Share What It Felt Like to Talk with Your Doctor About Long COVID
Understanding Long COVID
What is Long COVID?
Long COVID is a condition where people continue to have symptoms weeks or months after their initial COVID-19 infection. Some people feel better quickly after COVID-19. Others continue to experience new or ongoing health problems for a long time. Long COVID can affect people even if their original COVID illness was mild.
Who Can Participate?
Eligibility
You may be eligible if you:
- Are 18 years are older
- Currently live in the United States
- Have received a Long COVID diagnosis from a healthcare provider
- Have discussed Long COVID symptoms with a healthcare provider with in the last 12 months
- Can participate in a 60 minute online video interview in English
If you are unsure, you can still complete the form at "I would like to participate".
What Will I Be Asked To Do?
What Participation Involves
If you choose to participate:
You will complete a short survey to determine your eligibility for the study. If you qualify, you can complete a brief 5–10 minute questionnaire with basic background information (such as age range and how long you have experienced Long COVID symptoms).
After the inital survey, the research team will contact you to schedule an interview time. You will take part in one online interview (60–90 minutes) via Zoom or a similar secure platform.
During the interview, you will be invited to:
- Describe one specific medical visit where you discussed Long COVID
- Walk through what happened in that moment
- Share what you noticed, felt, and experienced
- Reflect on how the visit influenced your communication and decisions
You may skip any question.
You may stop the interview at any time.
Your Privacy Is Important
Confidentality
- The interview will be video recorded to ensure accurate transcription.
- Your name and identifying details will be removed from transcripts.
- In any publications or presentations, your story will be shared in a way that does not identify you.
- Data will be stored securely on password-protected systems at Georgia State University.
- This study has been reviewed and approved by the Georgia State University Institutional Review Board (IRB).
You are free to ask questions before deciding to participate.